When you are officially diagnosed with MG, ask your neurologist to write a "diagnostic letter" that outlines that you are diagnosed with MG, by what means you were and what course of treatment you are on (subject to change, obviously). Maybe ask them to put in the letter instructions about calling them directly and calling in a pulmonology consult. Or get a similar letter from a pulmonologist.

Make copies of that letter and have one in your wallet/purse for when you need to go to the ER.

Since doctors are quite likely to oppose the requests of a patient and not at all likely to oppose the "orders" of another doctor, this might help during an MG exacerbation or crisis.

Trying to get proper medical care should not be this difficult!

Are you out there fellow boffins? Jana? We haven't heard from you in awhile - hope you're okay.