Thanks to everyone who wrote ideas and links. I will be able to spend some time in the next few weeks reading and researching. I am VERY interested in the study Dr. Boles is doing and our dr is all for us participating. We do have a new pediatiric genetics dr at our clinic so that might be a place to find out more info, once I kinda know what I am talking about.

I know Fibromyalgia runs in our family on my mother's side--I am positive my grandma had it and I do think my mom has it. I know I have been diagnosed as well.

So, good news alert--my daughter took her first step in 6 months!!!! yesterday.