Yes, Alice, I have MuSK but at the time, I didn't know it. I presented very strangely at first. If you blinked, you might miss the symptoms. Not quite, but I would have very severe diplopia and dysphagia and ptosis yet by the time my appt would come, I would be symptom free. My antibody tests were negative for ACHR. I could wake up very symptomatic, yet improve as the day progressed. My legs were (and never have been) not really functionally affected.

I was, in fact, diagnosed with MG based on symptoms alone with some "barely suggestive" results on the NCV and regular EMG. That day my symptoms were present in all their glory. I was offered the SFEMG but the doctor said it didn't matter to him what that showed as he would treat me for MG, so I declined. I knew I had MG, too!

A few years later I tested for MuSK and it too was "borderline" but I was on Cellcept and pred at test time, so we chalked it up to that. With that test, the MG that I was experiencing had a name.

Hope that helps.