I just found out I registered negative on the Musk tested (all negs )
Hopefully, the MG expert neurologist will be able to open some doors & take the lead in coordinating health diagnostics & tests. I'm over my head with this.

I've contacted the pain specialist who I'd tapped as my primary doctor & am waiting to hear back about ordering arterial blood gas, urine test & maybe echocardiogram. I've asked for his input & opinion and officially asked if he's willing to be my primary (since it was a presumptive decision on my part). If he's unwilling or unable, I've asked him for referrals to a primary doctor with his similar skills (excellent listener & participant in conversation, takes initiative at explaining things, appointments last one hour).

On a positive note, I also heard from a lawyer with Advocacy for Patients with Chronic Illness and they're willing to help with the short-term disability appeal free of charge. VERY appreciated since I'm missing work & am now without salary. (And yes, I've submitted FMLA paperwork).

I appreciate everyone's support & input. Whether this is MG or some other autoimmune-related or other illness, the rose-colored glasses are coming off. I'm becoming quite concerned due to constancy of symptoms making it hard to breathe & sleep. I'm ready to tag someone else into the ring for a while.