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Old 01-29-2013, 04:05 PM
keepingfaith keepingfaith is offline
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Join Date: Jan 2013
Location: Illinois
Posts: 107
10 yr Member
keepingfaith keepingfaith is offline
Member
 
Join Date: Jan 2013
Location: Illinois
Posts: 107
10 yr Member
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Quote:
Originally Posted by Bojangles2013 View Post
Hello, My name is Amy. I am so confused right now. I have had signs of MS for going on 2 years now. Last summer my symptoms for worse, especially on hot days. I had always went to the tanning bed for years and had no problems. Last summer I went twice and could not go back. As soon as the tanning bed and room heated up I would get blurred vision, dizziness, numbess, tingling, heavy legs. Also, my hearing seemed like it would go in and out. To be honest I felt like I was drunk. After about 12 minutes in the bed I would have to get out. As soon as I started cooling off I would be back to my normal self.
I tried going to my families swimming pool and felt like that also. The symptoms were so bad I had to go home and get in the air conditioner. Then, the achy pains came along with numbness that comes and goes just about every day. It is like my symptoms are like clock work. Last summer I also had 2 episodes where my vision in my left eye went blurred and 1 hour later a headache came. October 2012 I decided to go to my family doctor and he referred me over to a MS Specialist whom I just had my first visit with on Jan. 10, 2013. The MS specialist continued to suggest I have "Small Fiber Neuropathy".
He did send me for a MRI of the cervical and thoracic spine, which he says he seen no lesions and he is diagnosing me with Small Fiber Neuropathy. If I am reading correctly about Small Fiber Neuropathy it is only common in diabetics and alcoholics? I am neither. I need some suggestions as to what I should do. Should I find another MS Specialist or Neurologist? Should I go to an eye doctor and have them look for damage to my optic nerve since I have had 2 episodes of blurred vision?
Hi...I can completely relate to your post! I have been having VERY similar stuff going on with me now for a year and half. I have not yet been diagnosed either. I also have been told that I have peripheral neuropathy. In my opinion the term neuropathy is very general and seems to refer to anyone with nerve pain. Just my opinion. Did you also have an MRI of the brain? I had no spinal lesions either. My advice to you would be to see another neurologist and hopefully get some testing done. Also it's important to check your vitamin levels particularly B12 and D. If B12 is low it causes all kinds of nasty neurological symptoms and the D can be causing some of your weakness. If you choose to see an eye doctor I think a neuro opthamologist would be best. I have read this a lot of places. The only thing I see different between you and me is that my symptoms never come and go.. they are always here, however I have recently quite drinking and consuming "diet" products as well as artificial sweeteners and my nerve pain has gone down A LOT. I only periodically suffer from burning pain and tingling mostly when I am resting. I really hope you get some help and figure this out!!
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