AnyaDee,

I agree w Kitty. Can you see a Neurologist or an MS Specialist? In Milwaukee or Chicago? Wherever there is an MS Center? And/or a Neuro-opthamologist? If you must have a referral, take some one w you and let them help negotiate this w the PMD. It really sounds like you need this.

I can't tell you what is happening and what is normal and when/if it will end. Besides "everybody's MS is different," there just isn't any "normal."

If you saw a neurologist in the ER- maybe you could call that person and get some help.
I agree w you that help is needed.

As to the strangeness at night- I have heard from a friend of waking up feeling like she was going to die. Not the second part though. I see why you don't want to sleep.

My very best to you. I wish I could help more.
ANN