I'm so happy!! I've broken thru the invisible hospital barrier!!
I ended up visiting a local clinic near my house because my breathing was becoming near impossible (from strangling sensation) and the doctor's dad has MG so he's totally familiar with it and has made it his mission in life to help MG patients navigate the system (he knows how much trouble his dad had initially).

This doctor asked if I had a primary doctor (I said "per se") and he told me he's going to be my primary doctor/advocate/leader/navigator to help me get everything I need! He's of course familiar with MG (more so than the neurologists I've visited so far). He put me on oxygen right away and sent me by ambulance to another hospital. He told me I couldn't leave the hospital until I had appointments scheduled with a pulmonologist & neurologist from the hospital (rumor is the hospital has an excellent neurology department, so I'm looking forward to finding out.)

Of note, they did the MIP & MEP tests again and the numbers weren't as good. The lady today did 3 tests each & did the tests more back to back. The lady yesterday gave me 3-4 minutes to recuperate between tests.

I'm in a waking dream. I'm tempted to pinch myself because this seems so unbelievably too good to believe. Did the universe finally hear me? Am I really going to be taken care of? Did I really find a doctor advocate who understands & will help coordinate for my health? I'm in a state of grateful shock....