Hi, KTF. Do you have an informal name you'd like to be called?

I have a few thoughts. First, you can always have more than one thing going on. Has anyone checked your Vitamin B12 level? Even at age 25, a deficiency can occur. Or pernicious anemia, which is an autoimmune disease where you can have parietal cell antibodies or instrinsic factor antibodies that attack your stomach. With PA, you don't absorb the B12 and you're also lacking stomach acid.

Has anyone done any basic endocrine tests? There are conditions that might look like they have a neurological source but are something else. Just an example would be dehydration affecting the heart, causing bradycardia or tachycardia. The most obvious thing would be to see a cardiologist but it's usually an endocrinologist who evaluates chronic dehydration (other than from not drinking water!).

Sometimes it helps to have a really good internist who can put other ideas out there, in tandem with a neurologist or other specialists. Do you have one?

Tingles can also be related to the circulatory system. Have you had an EKG done, where 12 wires are hooked up to your chest, arms and legs to see how your heart is doing?

Have they ruled out Guillain-Barre?

And this might be farfetched but what about arsenic poisoning? Arsenic is becoming more common in foods and it can hurt the CNS, as can other heavy metals like mercury.

Everyone here is great at bouncing ideas off of but you really need one or two - or more - good docs to figure it all out. Being in limbo is not fun. I hope you do get it all figured out soon, so that you can have the appropriate treatment.

Annie