What kind of tests did the Rheumatologist do? Did you have an MRI of the neck and shoulders? I have a breathing issue if I lay on my back, so I have to lay on my side. I will get pain that radiates into my shoulder and neck sometimes so I take my pillow and fold it on the edge to support my neck. I have a bulging disc and a bone spur which gives me problems sometimes.

Seishin, many days I wake up with my face drooping and a weak upper back, so weak that when I walk it jiggles. I think it's because while sleeping I get overheated. The droopiness fades a while after getting out of bed because the air is much cooler throughout the house.