Thanks Seishin,

You made me realize how important it is for physicians who had a personal experience with MG to help other patients.

I have been doing this to the best of my ability, but this will motivate me to do it even more.

It also made me wonder (again) why you have (as a physician) to personally experience MG in order to understand it. And also how we (physician with a personal experience of this illness) can communicate it better to our colleagues.

I think it is a very confusing illness and it does cause patients to behave in what may appear a very peculiar way.
I sometimes compare it to someone who is fighting an invisible dragon, that only he/she can see and also not all the time.
So you see that person throwing their sword around in the air, sometimes in unusual directions...

I am very glad that you have found a team of physicians you can trust to take care of you. It makes a huge difference.