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Originally Posted by bny806
wow, you have been through the ringer!!! So sorry to hear about all of that!!! I don't have a firm diagnosis, but take IVIG every 2-3 weeks, hopefully someone else can give you more insight... I do however have the muscle twitching/ shaking thing... I feel like I have a cell phone vibrating at times, it's really strange. Also after surgeries i have had difficulties and almost had to get intubated with my c section epidural.. couldnt' move my tongue or face or anything after it for a long time..
Have they checked for some of the periodic paralysis? (Hypokalemic/hyperkalmeic periodic paralysis)? Not sure if they can get so severe that it would result in intubation... Lambert eaton can also be affected by anesthesia.. and my last thought would be charcot marie tooth - it is an anesthesia affected disorder - but it may be that it can have a relationship with hyperthermia, not sure if it causes paralysis.. just a few thoughts..
Good luck! keep us updated!
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fasciculations are uncontrolled muscle twitching in muscles I have used that day--I can move the arms if the twitching starts, but the muscles won't stop twitching until I rest them for a while. The paralysis is not chemical based, more inability to move with NO MUSCLE STRENGTH. The ability slowly comes, and with a great deal of strength needed that 5 days ago, I didn't have to have. I have 3 children, husband, and a home to care for so weakness to not get out of bed is not allowed. The muscles slowly get stronger, and I do loose some muscle, and small PT helps. The ANESTHESTIC in my last procedure, followed MG guidelines for no paralytics, wasn't intubated, just a device to keep the airway open in my throat. ONE NEURO stated that my immune system is noticing the incision and there is a problem when it has to go into action...I also have had a immune IgA count to show an Autoimmune disease exists...because of this marker, now another piece to the puzzle.