Quote:
Originally Posted by korbi_doc
Ok, I made the call to add my name to the list....have not been on this drug, but would like to try it since Mestinon does not help me much & my episodes of weakness are getting worse...took the M today with no response as yet & my dypsnea does worsen as the weakness progresses....hope this helps for those of you who are so very reliant on the Mytelase....
Dottie
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I am going to bump this topic back up to the top of the list. and take this opportunity to say Thank you Dottie.
It puzzles me why the MG foundation is letting this drug just fade away without a peep. We have so few treatments. Why would you let one go away?
I have learned that MG patients who are having gastro intestinal problems on mestinon should probably be taking Mytelase.
Also if you are gluten intolerant or have Celiacs along with your MG, then you should be taking Mytelase not Mestinon.