thank you soo much for that download tkirk!
So the diplopia and nystagmus are seperate from ON?
I thought this whole time it was just ON. But I have definitely experienced all of them..
I was taking b-12, d3, calcium, flaxseed oil, fish oil, and grape seed extract. Grape seed extract is amazing, I love it. And my mom just got me some b-6, but I havent taken any of those yet, havent heard much about it. There is a high possibility that I have b-12 deficiency as I cut out all red meat about 3 years ago.. Gorsh I would loooove to have a burger! Or steak!

Sallyc right back at ya!


I had IVSM from 12-10 - 12-14
Thenpill tapered for 2weeks. Finished pills end of december.

The diplopia and nystagmus are gone for the most part. Pain, double vision out of side view, and a partial blind spot in my right eye out of center view remain. And flashers.

Im waiting to hear back from the program im working with to help find me a neuro.. Said she might have an opthamologist for me to see until I can get a neuro. Said she had to call the opthamologist first to see if shed be willing to see me as she is a diabetic opthamologist... ON is ON regardless of the disease... Right?

By the way... You are all amazing!