he's on a pretty low dose of mirapex 3 x .125mg? does he get any benefit from that?
and i assume azilect because they think it's possibly neuroprotective?

never hurts to get a 2nd opinion, maybe he can get by with nothing.

i think a lot of us tried everything in the book for symptom relief before taking meds.

even if your husband doesn't want to go to a YOUNG ONSET PD GROUP, you can and at least check them out, see if others switched from mirapex to requip or sinemet and did better, compare neuros, supplements, etc. maybe get a better understanding of your husband. there might not be anyone with advanced symptoms so your husband could go.

i've only gone to one parkinson's support group meeting, just lazy i guess, but there was a FIANCE of a pd patient wanting advice on how to convince her "husband to be", who was just diagnosed with pd and not there, to not cancel the marriage, he didn't want to burden her. interesting.


keep in mind the one active ingredient in sinemet is a naturally occurring simple amino acid, LEVODOPA, found in plants, and CARBIDOPA, which inactivates an enzyme which breaks down LEVODOPA so more gets into the brain. it's pretty natural imho.

the key imho is to find the right organization to help you, not just a neuro. not sure if there is one in your area, here's one in the seattle area
that tries to address the whole patient, something you can hopefully find in your area:
https://www.evergreenhealth.com/for_...s_care_center/

one thing about "obsessiveness" and any incurable chronic disease. with the advent of the internet, there is site after site claiming there is a cure for your disease and testimonials, blah blah blah. i know after my diagnosis i spent hours on the internet, obsessed, thinking i would get lucky and find some obscure report about someone getting cured, some hope. and i tried a lot of things, spent a lot of money, there was no end of people who thought they could help me and wanting to do endless trials and tests, from chelation to massage to magnets, i could go on. nothing helped, including chelation therapy which i was assurred would remove the mercury that was causing my pd. just the diagnosis totally changes your life to say the least.

i second the value of exercise, it might slow down the progression. i was very athletic when i was diagnosed so i was already exercising. whether he needs to be on meds to exercise aerobically might be an issue.

did you say your husband was still working since that would make the medication issue that much more important.