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Old 01-30-2013, 11:53 PM
Tracy9 Tracy9 is offline
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Join Date: Dec 2010
Posts: 166
10 yr Member
Tracy9 Tracy9 is offline
Member
 
Join Date: Dec 2010
Posts: 166
10 yr Member
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That is amazing news...!!!

Please be sure you know your numbers on the breathing tests. When I went to the ER earlier this month, my FVC was just under 1. My NIF was 28.

I just want you to know that getting 5 days in a row of IVIG can often lead to aseptic meningitis. I just got over that, too. If it happens, a dose of IV Decadron can stop it in its tracks. You want to make sure you get some IV Solumedrol before the infusions, as well as Benadryl and Tylenol. I would take 800 mg of Ibuprophen (my neuro says it is much better than Tylenol) round the clock throughout and at least for 48 hours after the IVIG. Hydrate a lot, and hopefully you'll be okay.
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