Quote:
Originally Posted by aascvt
Hi Nanc..
Forgive me for inquiring on this subject. But how is it that you are sure that the proper use of ice made your RSD worsen and spread? I am new to the hypothesis (at this time I have to call it that..) that ice is an absolute no-no for CRPS. I have read Dr. Hooshmand's article and understand his theories to an extent.. however that is what they are to me at this point. I would love to see some published studies, research trials, etc that have been done to evaluate this theory.
The reason why I ask how you know what made your RSD worsen and spread is because we know the nature of this disease. It is a disease that is systemic in nature due to the location of the sympathetic nerves. It is a disease that almost always spreads and worsens over time.
I don't know what to believe about the ice theory. I am steering clear of ice for now, which is agonizing because it was profoundly helpful for my pain. But for me, the verdict is still out and I need further evidence.
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I am happy to answer your question. A brief history on me first. I developed RSD in the right side of my face in 1991. With aggressive treatment, I was in remission for several years (a big flare took me out of remission). I hurt my right hand in 2009 and went through so many drs before I got a correct diagnosis. I developed RSD in my hand and it mirrored over to my left hand. I had a bad blood draw in my left arm, they treated it with ice and RSD spread there. I had left shoulder surgery, turns out the spur removed wasn't the cause of the pain, RSD was (thanks doc). I hurt my right foot (hit it on a metal door jam) and also had planters faciitis. The foot dr injected my foot and treated both issues with my foot. Ice is a main treatment for planters faciitis and it helped clear it up but it hurt the other part of my foot. RSD set in three toes, down the side of my foot and up around my ankle. It mirrored over to my left foot. I also have it in my left leg. My right shoulder has been bothering me and I got a couple of injections in it. They said it was inflammation in the AC joint and I needed to ice after the injections. The second time I iced it, it burned on the inside and felt frozen on the outside...well, RSD has set in.
The reason that I think ice made me worse is because each issue/injury was initially treated with RICE therapy and I got immediately worse after using ice. I NEVER overused ice or left it on too long. You may be wondering why I kept using it. Well, all of these injuries happened in a short period of time and when I realized that ice was doing more harm then good, I stopped.
Anyway, all the details are too long for me to type here but I know what ice did for me and it wasn't good. I personally would recommend to never use ice if you have or suspect to have RSD/CRPS. I know that chances are that the RSD would've spread with or without the ice. I think the ice increased those chances and helped it spread quicker.
Does any of that make sense? I am tired and have a headache while typing this...
Let me know if you have any further questions or need clarification in anything I said.
Nanc
