Thank you. Cait, having read so much, I get the sense I would respond better to the plasmapheresis. At this point, I'll take either. I haven't worked since Thanksgiving and only have $50 in the bank. Bills are coming due in two weeks. A friend will be lending $1,100 for monthly household expenses plus he'll cover my grocery costs. But I hope this financial generosity is needed for just one month and that I can return to work.

I forgot to mention the tensilon removed forehead ptosis, also. No more wrinkles! If only it'd fixed the bags under my eyes. My sleep has been miserable for months.

Annie, The PFM device I used only goes as high as 700 so that must be my baseline. The respiratory therapist was raving how his normal PFM is 600 so he was surprised mine was so high. I figure all those years trying to 'push through the breathing pain' to be an athlete while fighting undiagnosed MG gave me increased lung capacity.

Taking the tensilon was weird and not what I expected. At first, I was afraid it hadn't worked and started questioning whether I'd misdiagnosed myself. They started at 2 mg and I couldn't feel anything except for increased twitching in my face. The doctor tripled the dosage with the next injection and my face exploded in twitches. Twitches upon twitches to the point I could barely see because the twitches were so strong & rapid-firing. The others in the room could see the exploding spasms, too. Because the twitching continued so forcefully, I barely noticed the ease of pain in my neck and improvement at speaking and turning my head. I felt better overall but was horribly distracted by all the twitching & dizziness. The eye twitching was so relentless, it was inhibiting my vision & tempting me to close them.

It was the peak flow meter that convinced me. I finally was able to breathe in as deeply & freely as I wanted. And the fact the repeated numbers held so steadily at 700,... I felt vindicated that I truly was an athlete (having been stuck in a body deblitated by MG, but underlying, I am an athlete with heightened lung capacity).

Once the tensilon wore off and the garments of pain & fatigue returned to neck & face, that's when I noticed the dramatic before & after effect of the tensilon injection.

I've slept & do feel much better compared to yesterday. But I plan on arriving at my doctor's appointment 30 minutes early this morning and asking if I can sit with oxygen prior to appointment time.

Annie, when you ask if they checked my 02, do you mean using the clip on my finger? I've never seen that number below 95. Last night, I don't know if it even dropped below 98. And although I've asked for ABG 100 times or more from the multitude of doctors these last couple months, not one has performed ABG. Honestly, do I need to bonk heads together?

Rest is on the agenda. I'm back at my friend's house & he's being a wonderfully attentive caregiver. (He's my ex-boyfriend. I wish he'd been this attentive when we were dating. I do love the man, though. He's being amazing through all this.)