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Originally Posted by loretta
Hi, I agree losses are very difficult to deal with. I'm so sorry you are having such difficulty with your legs and walking. I really don't have any experience or knowledge with any type of assistance.
I was just wondering if it is at all possible for you to gain any sort of strength thru PT or possible warm water therapy? I realize that this may not be possible-just looking for an alternative. I know it must be devasting at the thought of losing your mobility and enjoyment of walking. I hope others here might know types of assistance. Keep posting and let us know how you are doing. loretta
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Thank you Loretta. I've been doing PT including warm water therapy. Lots of meds and one series of Ketamine. I've been reading and it appears that much of what I'm experiencing is explained by dystonia. I've had trouble reaching for items, weakness in trying to lift what should be easy, and progressive weakness despite my efforts to remain active. But thank you for your supportive words.