New Member
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Join Date: Feb 2013
Posts: 1
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New Member
Join Date: Feb 2013
Posts: 1
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!OMG, it's almost like reading my own story!
Started out medically treating with diamox, proceeded to have ONSF to my right eye only to have my left eye done a month later, and yet the headaches continued. Two months later had my first shunt placed, LP shunt. Headaches decreased significantly but there were still days when I had those horrible ones yet.
Am currently on topamax & gabapentin which is doing well with the headaches most days. I have a great deal of other pain with OA, RA,.. have what they often refer to as a complicated medical history...just lucky I guess.
Sorry to hear you have this & I do hope you can get back to your medical training/education. Perhaps you could change the way some (in reality, many) docs think & treat us IIH patients. Think we all have stories where we have been treated less than kind at one time or another.
Peg
Hang in there! I pray it does get better for you!
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