Quote:
Originally Posted by Marie33
Hi There,
Sorry your going through a difficult time. I was wondering the same thing about SFN and exercise and came across your post.
My question is the same as yours to those who regularly exercise inspite of the pain, if you can tolerate the pain and you continue to exercise will It further damage our nerves? I like going on the treadmill to stay fit. But there are days when my feet burn (slightly) and walkin makes the burn worse. Sometimes I end up with some tingling in my lower calves too. I wonder if the TM is making my "condition" worse by further damaging the nerves? (I stay at around 2.4 and incline 4.)
Also, I was reading some of your posts from last year re your "normal" skin biopsy. Did you have another Skin biopsy since last April? Were you Dx with SFN or PN since then. If not how does the Dr explain your symptoms?? I had a "abnormal" skin biopsy last Oct. all other neuro diagnostic tests were normal, including vibratory, pins, hot & cold. I have neuropathy symptoms, but no cause was found. (Idiopathic -I hate that word) Burning feet, pins & needles in my legs, arms and fingers. (no numbness) some other painful sensations on and off and some days I feel it on my face and lips. Im having a hard time accepting that this "disease" that seems to have come out of nowhere has no cause. I am otherwise in great health. Have they found a cause for your neuropathy yet? Sorry for ranting, but its difficult to accept that there is no cause or that we may never heal..  |
When my PN symptoms started more than over a year ago, I had almost all possible tests I read here but all came back normal. I had my skin biopsy but came back normal too. My journey in finding out the cause for my PN was long and arduous, just like most of the posters in this forum. The EMG/NCV was normal. My muscles are strong, in fact the word my doctor used was “robust”. He did not seem incline to give me another skin biopsy. I intend to have another skin biopsy in the future. You are right, it is hard to believe that something as painful as we have has no cause and possibly no treatment.
My symptoms are like yours: prickly skin (it used to be constant but now its minimal) but its my feet which are becoming really more painful. The feet pain I used to experience was nothing compared to the pain I have now. But, inspite of the pain I still try to exercise because it is very important for for my other health conditions. This is the reason why I need to k now that exercise doe not do any more damage to the nerves.