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Old 02-04-2013, 05:35 AM
Rabid Weasel Rabid Weasel is offline
Junior Member
 
Join Date: Feb 2013
Posts: 16
10 yr Member
Rabid Weasel Rabid Weasel is offline
Junior Member
 
Join Date: Feb 2013
Posts: 16
10 yr Member
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Quote:
Originally Posted by (Broken Wings) View Post
Welcome

No apology necessary. We don't do word count here. If someone don't have time to read long posts, we understand that, too. This is your place to share in a manner that is comfortable to you.

Don't worry about typos. We can get it or ask you to clarify.

You are also giving others information they may need. This can be a win-win place.

So sorry you have a tumor in this area. It's not a good thing. I know you are realizing this. I hope they can shrink it or stop the growth somehow. I'm sure you're in good hands with your doctors on board.

Do your own research on doctors, though. Some are a tad bit more knowledgable about a tumor on the spinal cord. This could require a special specialist.

This may be pretty rare, which means you're very special.

There's probably names of specialists on here. Maybe someone will come along with a recommendation in your area.

Hubby has a great neurosurgeon in Louisville, Ky, Dr. Altstadt. He's young and very good. Full of confidence, seemingly. I'm sure he could handle it. They are out there. You have to find the right one for you.

It would be a good idea to make notes about concerns or questions you have, so you can ask doctors on upcoming visits. It can be overwhelming if you don't get a handle on things.

Ask a doctor or good nurse to write down important terms that you're not familiar with. Maybe get a copy of reports so you will have that to refer to.

It helps to understand things.

I hope things go well for you. My thoughts and prayers are with you.

Keep us posted.
I actually had the surgery done Jan 24, 2012. It was performed by Dr. Okwonko, a professor of neurosurgery at UPMC. I couldn't ask for anyone better.

And yes, from what I gather this was a pretty rare incident. I was asked if it was ok if an audience could be present during the surgery and how I felt about being in a medical journal (not me per se, but the tumor). I was very cool with both.
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"Thanks for this!" says:
(Broken Wings) (02-06-2013)