Quote:
Originally Posted by AnnieB3
I think there are patients with ACh and MuSK antibodies who are never diagnosed. And doctors are very uncomfortable diagnosing seronegative MG. It's as if they don't trust the clinical evidence.
Annie
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Annie,
Thanks for sharing this slide show with us. It's very informative.
In terms of seronegative MG, I'll have to say that I've received a lot of support from Mayo. Multiple neurologists back home refused to diagnose my MG b/c of negative antibody tests, even in the face of a fairly clear clinical picture. Fortunately, Mayo reviewed my testing (and put me through most of the testing again) and then gave me a tentative diagnosis of "seronegative MG" and recommended some treatment to determine response. My neurologist there has not wavered, even with my EMG being negative.
I count myself as one of the fortunate ones. I now have a neurologist back home who is very supportive. I try to put the very negative experiences I had with neurologists previous to all this, behind me.
Cate