Quote:
Originally Posted by hopeful2013
I've had a spontaneous CSF leak for over 6 years and have already had 2 unsuccessful surgeries to close my leak. Now my doctor (Dr. Schievink, Cedars-Sinai Medical Center) is recommending that I have a new type of surgery where he opens up the dura, rolls the spinal cord to the side, and sutures the hole from inside the dura. Has anyone had this surgery? If so, what was your recovery like and was your surgery successful? Thank you for you assistance in helping me to make a difficult, yet informed, decision.
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Did you suffer any side effects from prior surgeries? Can you live a somewhat normal life or are you stuck in bed? I have had numerous surgeries and have nerve damage. At this point I have to have another surgery in order to repair some of the damage or I will be in bed forever. Think long and hard about risks.