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Old 02-05-2013, 07:58 AM
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alice md alice md is offline
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Join Date: Sep 2009
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alice md alice md is offline
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alice md's Avatar
 
Join Date: Sep 2009
Posts: 884
10 yr Member
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Forgive me for saying this, but are you sure you have myasthenia?

I am not suggesting that your symptoms are caused by "emotional problems", but by some other medical problem which they may be missing because you are so convinced of having MG.

I may be wrong, but it seems to me that you come to your physicians telling them that you know what your illness is and you know better than them what tests have to be done and how they should diagnose it.

You create for them a very easy yes and no situation- MG or not MG.

It is true that MG is many times not an easy to diagnose disease and patients with MG are sometimes not diagnosed properly for many years. But, this does not mean that every patient who has an unusual and hard to diagnose illness has MG.

Why not take a different approach. consult a good non-specialist well-rounded neurologist. Some one who is interested in thinking what your illness is and has a broad/open-minded thinking.

You mention that your illness started at an early age, you have some abnormal blood tests which do not fit with MG, you describe breathing difficulties with relatively normal respiratory tests. Someone has to put all this together and not just say if you do or do not have MG, but what illness you do have causing this.
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"Thanks for this!" says:
1mary12w (02-18-2013), 4-eyes (02-05-2013), seishin (02-05-2013), Tracy9 (02-11-2013)