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In Remembrance
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Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
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In Remembrance
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
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Hi Ang,
I really hate to say this, but your experience is all too common; from docs missing the problem and hoping that it will just go away to spouses (husbands usually) who want to pretend this nightmare is just attention seeking.
I'm sorry this disease struck you, but the one tiny sliver of silver in this otherwise very black cloud is that you found us...you now have a new bunch of friends that you will probably come to think of as family; people who understand what you're going through and somehow manage to comfort and support one another despite (or maybe because of) our own pain.
I hope your husband is just having problems coping with the fact that the woman he loves is suffering and he can't understand why or how to help. If he's a good man, you can probably select a few posts from here, save them in a single folder, and let him read the when he's ready.
If he's a jerk, he'll eventually bail out (us guys are good at that), and though you may feel otherwise at the time, that will be the best thing he could do for you. You don't need the extra aggrevation on top of this.
The bad news is that the effects of the block will fade. You will soon learn that symptoms do spread to other parts of the body. Hopefully, you will read one of my posts on symptom migration and begin taking grape seed extract (GSE) to at least delay this happening.
Hang in there, my new friend. The road is hard and bumpy, but you will meet people here who are living proof that you can survive RSD, and find enough joy and humor in life to keep going...Vic
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The great end of life is not knowldege but action. T. H. Huxley
When in doubt, ask: What would Jimmy Buffett do?
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