Hi to you all,
So glad I found this site, it has been my saving grace.
This is my first post, so forgive me if I ramble a bit. I was diagnosed in Aug last year with PCS, after a blow to the head at the begining of June. Symptons didn't show untill 2 weeks after.
Started having panic attacks and feeling weird, went to Dr. who said it was migraine and that my neck was stiff and to get a massage.
At the time I had forgotten about the accident so did not associate the symptons with a bang on the head.
Any way to cut the story short symptons persisted and got worse, after many trips to Dr and A & E hey presto PCS.!!
Well I did not think in my worse nightmare that anyone could feel so bad, and trying to explain to friends and family how you are feeling was very difficult.
I paid privately to see a nuerologist in Sept. who checked me out but basically said I was typically suffering from Post Traumatic Migrain with Aura, which is common after a trauma to the head. And if symptons persist then medication would help.
So here we are 7 months on and I have only taken a few meds in the begging, as not keen on them, I seem to feel worse after taken them. I did go for some cranial massage in the begining, but that seemed to induce my headaches more, so stopped after 5 sessions.
I have been following this site since my diagnostic back in Aug. and just to know there are others with similar stories made me feel immediately relieved, and have found it so helpful,
I dont think I rested enough at the start and as I work from home running a Boarding Cattery, summer was our peak time , so in the end I had to take on a lady to help me.
Anyway things seem to be improving I'm almost back to me again.. and its all down to you wonderful caring people with your words of encouragement and advise and support. I could not have done it other wise.
The Dr just seem to want to give you pills no one seems to be able to give any follow up care.
I noticed one of the guests wants to start a support for PCS sufferers, well I think that would be absolutely amasing thing to do
I now rest twice a day, eat a very healthy diet, with fruit veg lots of water, I now know when I need to rest, I donot muli task, I limit my Iphone/computer/reading.
Although I have some new glasses coming with tinted lenses, so hoping they will help,
Its all very hard but you soon get into routine.
I do yoga twice a week and zumba once a week and have reflexology onec a month. all of which have helped immensely.
For my anxiety I was having what we call I Talk, which is run by the nhs and and you get to talk on the phone each week to a professional therapist/wellbeing officer,and it was invaluable. Also my family and friends have been a great help and understanding, so am very lucky.
Gosh I have rambled on. But I know its not over yet, I;ve still a long way to go....
C
