gr8ful, You have found yourself to the right place. There are lots of helpful members willing to share their experience to help you through the uncertainty.

I myself still do not have a definitive diagnosis yet. My antibodies are negative so far, I have an SFEMG later this month. I started with ptsosis of the right eye, followed by severe fatigue, stumbling tripping, dropping things, changes in my speach and choking with eating and drinking. I also am still walking (fell a few times), talking and working. I am out of work this week from a fall the week before. I have just started Mestinon and the neuro opthamologist just raised the dosage. Hopefully I will feel better.

I am mangaing but I am limited in my physical activity. I have made a lot of adjustments and accommodations along the way from when and what I eat, to the temperature of my shower, to very limited physical activity and lots and lots of sleep and naps.

This forum has educated me by following the threads and members sharing their experience in their posts. Try not to get too over-whelmed. I know how stressful the diagnosis process can be and stress just makes this illness worse. Try the sticky at the top of the forum for some general info.

Welcome to the group but sorry you have to be here,
kathie