Quote:
Originally Posted by Angelina55
First a little background.... I have had CRPS type 2 in my left ankle since october 2012. It is very severe. Since thursday January 31 my entire left leg up into my lower back has been having CRPS symptoms and they are very severe. They started after getting a lumbar sympathetic injection. I am having a hard time walking and have had to start using crutches to get around and a cane when I am home. The pain is just unbearable! I can hardly stand to have even clothing touch my leg. I am having burning, extreme sensitivity, little color changing, temp changing, pins and needles sensations, spasms,kinda like jolts of holy sh%& pain up my leg, weight bearing is impossible without flaring the pain up more, and constant extreme pain. The doctor wants to get a nerve conduction study test done, but is going to wait because he doesn't want to make me more uncomfortable than I am. He is hoping this is just a flare up and not CRPS spreading. I am just curious about two things... if anyone has had a nerve study done on an infected area? and your opinions on if this sounds like a flare up or spreading? Thank you for your opinions!
Angelina  |
Hi Angelina, My understanding is that your crps was 'only' in your ankle/foot right
'until' you had the lumbar s. injection? I've had flares and spread. Spread from one side of upper body to other side of upper body. spread from upper body to hand. spread from one hand to the other hand. spread from upper body to lower body-legs/feet. And I've had flares. The flares I have had were a worsening of the same body part Not to additional body parts. The swelling would increase and pain increased- and then calm down.
I call the movement from one body part to the opposite side or from upper body to lower body a 'spread' That's just my opinion. I don't want to unnecessarily worry or scare you. but I don't know what else to say. From your description, I'm sure that is why your dr. wants to do more testing. I do know from being on this site since 2007 that many have had 'spread' from procedures involving injections and needles. And many talk about their flares.
My CRPS started in 1996. I was diagnosed in 2002 by an ortho. doc. on the west coast. Then when I came 'home' to AZ I saw a neurologist. I know he did nerve conduction tests on me and confirmed the crps and started me on neurotin and pt with a ortho hand doc.
Later when I had full body spread another neuro (my insurance changed) the new neuro diagnosed me with 'generalized' or full body crps.
Like everyone of the dear people here, I've been thru @%&&- frozen shoulders, hand/fingers, toes/ with grueling 200 pt treatments. the touch sensitivity, the curling of fingers (left hand partially permanent) toes curling/ electric shocks, uncontrollable spasms. pain pain pain, headaches, insomnia, depression, anxiety, many losses, but am better now.
There is hope! I don't have the sensitivity, electric shocks or spasms anymore.
anxiety, depression, headaches, yes. burning up yes. especially in feet and legs. I don't really know why some symptoms have gone away, other than high doses of meds. and lots of continuted work on movement.
When is your next appointment and tests? I know you are worried. Was your diagnosis soon after your 'injury' or event leading to crps? That is so in your favor for a 'better' outcome of remission. Many of us didn't get an early diagnosis. Many of us was years later. That's not good.
What a blessing to you to have found this site 'early on' I'm big on getting as much education on this as possible. Being very active in your own health care.
Please let us know how you are doing-we care! loretta
