Dear Sisinchrist,
I wanted to message you because I too have dandy walker syndrome and hydrocephalus. I am nineteen and I have been suffering with shunt failure and intermitten shunt malfunction all my life. I also have an old tube coiled in my stomach from when I was five or so. I believe that I am currently going through a malfunction as I am having major headaches, I am sleeping a lot and my neck is aching on the side of my shunt. Unfortunately I haven't found anything that really helps the pain and every time I go into the doctor's they send me home, I guess I need to catch it at the exact right time. If your daughter would like to talk to anyone I would be more then happy to let her know that there is still a life to be lived through the pain and surgeries!!