Quote:
Originally Posted by loretta
Hi Angelina, My understanding is that your crps was 'only' in your ankle/foot right
'until' you had the lumbar s. injection? I've had flares and spread. Spread from one side of upper body to other side of upper body. spread from upper body to hand. spread from one hand to the other hand. spread from upper body to lower body-legs/feet. And I've had flares. The flares I have had were a worsening of the same body part Not to additional body parts. The swelling would increase and pain increased- and then calm down.
I call the movement from one body part to the opposite side or from upper body to lower body a 'spread' That's just my opinion. I don't want to unnecessarily worry or scare you. but I don't know what else to say. From your description, I'm sure that is why your dr. wants to do more testing. I do know from being on this site since 2007 that many have had 'spread' from procedures involving injections and needles. And many talk about their flares.
My CRPS started in 1996. I was diagnosed in 2002 by an ortho. doc. on the west coast. Then when I came 'home' to AZ I saw a neurologist. I know he did nerve conduction tests on me and confirmed the crps and started me on neurotin and pt with a ortho hand doc.
Later when I had full body spread another neuro (my insurance changed) the new neuro diagnosed me with 'generalized' or full body crps.
Like everyone of the dear people here, I've been thru @%&&- frozen shoulders, hand/fingers, toes/ with grueling 200 pt treatments. the touch sensitivity, the curling of fingers (left hand partially permanent) toes curling/ electric shocks, uncontrollable spasms. pain pain pain, headaches, insomnia, depression, anxiety, many losses, but am better now.
There is hope! I don't have the sensitivity, electric shocks or spasms anymore.
anxiety, depression, headaches, yes. burning up yes. especially in feet and legs. I don't really know why some symptoms have gone away, other than high doses of meds. and lots of continuted work on movement.
When is your next appointment and tests? I know you are worried. Was your diagnosis soon after your 'injury' or event leading to crps? That is so in your favor for a 'better' outcome of remission. Many of us didn't get an early diagnosis. Many of us was years later. That's not good.
What a blessing to you to have found this site 'early on' I'm big on getting as much education on this as possible. Being very active in your own health care.
Please let us know how you are doing-we care! loretta  |
Yes it was only in my ankle/foot until the injection, that is when in my opinion it spread up my leg into my hip and my lower back. I was confused when he said he was hoping it was just a flare up because that didn't make sense to me since it was in a different body part. Which is why I wanted to ask this question.
I had torn a tendon in my left ankle and had surgery to put in a graft and two screws to hold it in place. The screws after a couple weeks started backing out and hitting bone and nerves. So in Aug. we did another surgery to remove the screws. After this surgery everything just started going down hill. First my foot stated going numb, then the pain hit and OMG did it hit. I didn't imagine that a person could be in so much pain! And of course the color changing, ice cold to touch, burning, well you know the symptoms I am sure. I was lucky enough to have had a surgern who knew about RSD so he sent me to a pain specialist in Oct. who is very familiar and diagnosed me with CRPS type 2 because of the nerve damage. The think I also have a couple impinged nerves in my ankle. So i started injections right away and intense PT right away, and I started getting better.
Then a week ago I got the same injection but for some reason everything just went to hell. I don't understand why??!!! It is so frustrating.
I am curious how bad the nerve study hurts because I am thinking I would rather just get it over with and do it now rather than wait. I am not a good waiter! LOL But can it make crps spread again? and I am guesing it has to be with needles and done on the injured leg right?
Angelina