I have the symptoms of MG but my antibodies are negative. My neuro optomologist started me on mestinon when my symptoms got worse - started falling. Mestinon helps a lot. I am still waiting on the SFEMG later this month for the definitive diagnosis. My insurance covered the mestinon even though I am just a probable MG. I threw away the receipt but I think it said a 30 day supply was $90, I only had to pay the co-pay.

I had RSD 20 years ago which is under control now. SO I would not rule out 2 neurological things going on. When I first started with symptoms, I worried that the RSD was coming back but the symptoms did not fit.

It is also common to have more than 1 auto-immune disease. Did the neuro think the polyneuropathy might have an auto-immune component?

Talk it over with your neuro. DId they run any antibody test?

Good luck,
kathie