Quote:
Originally Posted by Angelina55
Yes it was only in my ankle/foot until the injection, that is when in my opinion it spread up my leg into my hip and my lower back. I was confused when he said he was hoping it was just a flare up because that didn't make sense to me since it was in a different body part. Which is why I wanted to ask this question.
I had torn a tendon in my left ankle and had surgery to put in a graft and two screws to hold it in place. The screws after a couple weeks started backing out and hitting bone and nerves. So in Aug. we did another surgery to remove the screws. After this surgery everything just started going down hill. First my foot stated going numb, then the pain hit and OMG did it hit. I didn't imagine that a person could be in so much pain! And of course the color changing, ice cold to touch, burning, well you know the symptoms I am sure. I was lucky enough to have had a surgern who knew about RSD so he sent me to a pain specialist in Oct. who is very familiar and diagnosed me with CRPS type 2 because of the nerve damage. The think I also have a couple impinged nerves in my ankle. So i started injections right away and intense PT right away, and I started getting better.  Then a week ago I got the same injection but for some reason everything just went to hell. I don't understand why??!!! It is so frustrating.
I am curious how bad the nerve study hurts because I am thinking I would rather just get it over with and do it now rather than wait. I am not a good waiter! LOL But can it make crps spread again? and I am guesing it has to be with needles and done on the injured leg right?
Angelina |
Hi Angelina, I'm so sorry you are going thru this nightmare. It's been over 10 years since I had the studies done by my first neurologist. I really don't remember them. I do remember not being able to tolerate accupunture at all. Only went the one time. I do know that many have had spread from needles and injections. Even now when I get a blood draw, I take precaution of asking for the senior person on staff (most experienced) Also ask for 'butterfly needle' it is smaller and less invasive than regular needle. Next time will ask difference of pediatric needle and butterfly needle. Even at dentist, they give me antibiotics before any procedure and even cleaning. Also get 'laughing gas' before procedure to relax me. In my opinion, we are more prone to 'problems' when we are overly anxious, stressed etc. Have you asked the Dr. or pain specialist their opinion of tests at this time of extreme pain? It sounds like you may want to ask more questions about the test.
Did you read the post on vitamin c and it's role in preventing spreading? If not, I'll find it and post the site.
You mentioned sensitivity to touch, my pt people had me take several plastic bowls and put different items in them and run my hand thru them. Like cotton balls, sugar, rice, beans, coffee grounds. You could even do different fabric textures. You may want to ask them for any suggestions on de-sensitizing your foot/ankle and leg. I did that 7 days a week besides my 3 days a week at pt.
Maybe someone will post that has more recent experience with the nerve studies. Sorry I couldn't be more help with that question.
Are you keeping a daily journal of what you are going thru, so you can relay that to your Dr. It's so easy when we get into an appointment for forget important symptoms. They need to know everything that is going on with you and how much worse you have gotten. Who is the main one in charge? your pain specialist or neurologist? Take care- loretta