Getting a diagnosis is really dragging out so much longer than I'd hoped. I just got word I tested negative for the anti-VGCC antibody. I've tested negative on the anti-Musk and AchR modulating, binding, blocking tests. I responded to Mestinon and Tensilon and have the SFEMG this Monday scheduled by the neuro at 9:30am, but I'm concerned.... What if I test negative for that, too?

I think I'd feel more comfortable (since I have home oxygen) cruising along without a diagnosis if not for the short-term disability appeal deadline looming. And the longer I go, the more financial strain I'm under without an income to pay rent & bills.

And if this isn't MG syndrome-related, then what is it? The unknown part scares me a bit since I don't know if this is something I can come back from (my mom had ALS so that's always in the back of my mind....)

I wish I could just the answers....