Originally Posted by Ravenclaw

Hi there,

It must be scary for you.
Though anti achr ís highly specific, it is possible to be "false positive" meaning you have the antibodies but not the disease. This happens for example with some LEMS patients or older people (70+). But in combination with your ptosis it's a good change you have it.

However, this doesn't mean the end or you changing your plans!
It just varies a whole lot. The standard textbook you can expect:
Some expansion of muscle weakness, like your facial muscles, arms, hips. It wil be progressive for the next 3 - 7 years, then will stay the same. Medicine can help to get a life with not so many problems or even an earlier remission. (Meaning you are a patient, but with no symptoms).

However, it just varies. To be honoust, I've never seen such a textbook patient. Some with MG will be in a wheelchair, need support like respiratory support, take 60 pills a day wit loads of side effects. But these are extremes. Others take 3 pills a day, and can still work, go out, sport, run, do whatever they fancy. I know someone with MG who works 80 (!) hours a week, runs marathons and is very active.

It's also possible it will stay with ptosis (there is such thing as OMG, just occular).

We can't tell you how much problems you're going to get. There is a good chance that, maybe with the help of some pills, you will have very little symptoms. If there's one thing I can tell you, it's that being stressy or anxious about it is no good. And that if you want to say something or ask questions, you can go to this forum. (Oh wait, that's two things )

Anyway, good luck with your neurologist.