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Old 02-08-2013, 07:28 PM
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Angelina55 Angelina55 is offline
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Join Date: Feb 2013
Location: Post Falls, ID
Posts: 175
10 yr Member
Angelina55 Angelina55 is offline
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Angelina55's Avatar
 
Join Date: Feb 2013
Location: Post Falls, ID
Posts: 175
10 yr Member
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Quote:
Originally Posted by loretta View Post
Hi Angelina, I'm so sorry you are going thru this nightmare. It's been over 10 years since I had the studies done by my first neurologist. I really don't remember them. I do remember not being able to tolerate accupunture at all. Only went the one time. I do know that many have had spread from needles and injections. Even now when I get a blood draw, I take precaution of asking for the senior person on staff (most experienced) Also ask for 'butterfly needle' it is smaller and less invasive than regular needle. Next time will ask difference of pediatric needle and butterfly needle. Even at dentist, they give me antibiotics before any procedure and even cleaning. Also get 'laughing gas' before procedure to relax me. In my opinion, we are more prone to 'problems' when we are overly anxious, stressed etc. Have you asked the Dr. or pain specialist their opinion of tests at this time of extreme pain? It sounds like you may want to ask more questions about the test.
Did you read the post on vitamin c and it's role in preventing spreading? If not, I'll find it and post the site.
You mentioned sensitivity to touch, my pt people had me take several plastic bowls and put different items in them and run my hand thru them. Like cotton balls, sugar, rice, beans, coffee grounds. You could even do different fabric textures. You may want to ask them for any suggestions on de-sensitizing your foot/ankle and leg. I did that 7 days a week besides my 3 days a week at pt.
Maybe someone will post that has more recent experience with the nerve studies. Sorry I couldn't be more help with that question.
Are you keeping a daily journal of what you are going thru, so you can relay that to your Dr. It's so easy when we get into an appointment for forget important symptoms. They need to know everything that is going on with you and how much worse you have gotten. Who is the main one in charge? your pain specialist or neurologist? Take care- loretta
I am not seeing a neurologist, in fact I'm not sure I know what that is. Right now no one is in charge which is frustrating. When something goes wrong like when my leg started getting symptoms, I didn't know who to call. I think I am going to go to my family doctor and talk to him. Maybe he can refer me to a neurologist. The pain specialist doesn't want to take point for some reason. Right now I guess the main person is my podiatrist. And yes I know about vitamin C, I take 1500 mg. I have not been keeping a daily journal, I don't really want to remember being like this, but I guess it is a good idea. Plus I don't want to put it down in words that I am getting worse..lol I know... it is stupid. LOL
I do some desensitizing to my ankle (rub different textures on it) but haven't started on my leg. Just my hands. It is just too painful and I can't take it. But i still try.
Angelina
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