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Old 05-06-2007, 03:09 AM
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Judy2 Judy2 is offline
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Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Default Ahhhhhh!!! On the roids.........

Wow -- I sure could use some good thoughts about now! This is kind of a last resort to maybe help with my general weakness and legs refusing to move at all (a recent development).

Maybe some of you remember that I'm allergic to solumedrol, big nasty hives, so they use Decadron instead. Still get all those "wonderful" side effects but no hives. Yesterday was the first day of three. At least they persuaded my insurance company to let the home health nurse come here and give it to me!

Haven't even seen a neuro in over a year so was kind of surprised he prescribed it by phone???? However, I was really taken aback when his nurse relayed the message to me that my neuro said he didn't really think it would help. Encouraging -- thinking positive -- I don't think so. This reinforces my desire to go somewhere where there are actual MS specialists and get a second opinion, even after all this time.

The occupational therapist coming to the house has given me some really good suggestions and contact people. Of course you know our "MS brains"......it will take awhile for me to sort it all out!!!

So, the roid headache is here, my body temp feels a couple degrees higher and naturally they have me take Lasix to prevent fluid retention -- as if my bladder problems weren't bad enough all ready! And I had forgotten that shot in the stomach to prevent blood clots.

Sure hope this helps!!!!! Good thoughts would really be appreciated! Thanks everyone for being there!!!
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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