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Old 02-08-2013, 10:51 PM
snowlily snowlily is offline
Junior Member
 
Join Date: Feb 2013
Posts: 18
10 yr Member
snowlily snowlily is offline
Junior Member
 
Join Date: Feb 2013
Posts: 18
10 yr Member
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Quote:
Originally Posted by Jacjie Stone View Post
I've had five surgeries on my back - one cervical fusion with success but four on lumbar spine w/many injections, procedures, emg's, mri's, ct scan, myelogram, fusion, revision. After much research I learn that this condition which is hideous with pain has no cure, no surgery, pretty much "man made" from too many invasive procedures. I've lost my federal government job, have to move to a less expensive city, go on welfare, etc. all because of the pain and not being able to go to work. Can't find adequate pain management as in this D.C. area they're all paranoid about their precious licenses, drug seekers and disregarding true pain patients with backup tests and reports, films, etc. The doctors crippled me and now they don't want to provide pain relief and have destroyed my life. Caution: doctor's will tell you side effects of various procedures, shots, surgery, mri, myelogram, etc like bleeding and infection and NEVER mention the worst side effect of Arachnoiditis; several individuals I know of have committed suicide due to the pain. British websites are very comprehensive and tell of the "dirty little secret" in this country as they get MUCH more money from these many various procedures and reluctant to provide oral meds when nothing else works. It's important to become educated as very few people are aware of this condition.

Dear jaki, I have adhesive arachnoiditis. I had four lumbar surgeries, csf leaks with grafts, epidural inj's too numerous to count & a myelogram with pantopaque. So, its impossible to know which or what or all of these things caused it. Luckily, i dont have to be under the coersive tactics of pain mgmt/anes anymore that hold your medicine hostage until costly procedures agreed to that make arach worse because i see a PM&R dr & have for 12 years. I was told i had arach in 2012 & it was on all my MRI's since 1988! I completely understand your pain, frustration & confusion when we cant even find a dr who knows what arachnoiditis is. Ive researched alot & am glad to find you.
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"Thanks for this!" says:
ginnie (02-16-2013)