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Member
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Join Date: Jan 2009
Location: Paradise
Posts: 855
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Member
Join Date: Jan 2009
Location: Paradise
Posts: 855
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Quote:
Originally Posted by Angelina55
I am not seeing a neurologist, in fact I'm not sure I know what that is.  Right now no one is in charge which is frustrating. When something goes wrong like when my leg started getting symptoms, I didn't know who to call. I think I am going to go to my family doctor and talk to him. Maybe he can refer me to a neurologist. The pain specialist doesn't want to take point for some reason. Right now I guess the main person is my podiatrist. And yes I know about vitamin C, I take 1500 mg. I have not been keeping a daily journal, I don't really want to remember being like this, but I guess it is a good idea. Plus I don't want to put it down in words that I am getting worse..lol I know... it is stupid. LOL
I do some desensitizing to my ankle (rub different textures on it) but haven't started on my leg. Just my hands. It is just too painful and I can't take it. But i still try.
Angelina |
It sounds like you already have peripheral neurological issues. So I would want to know what positive changes could possibly occur by performing invasive studies like EMG/NCV? When I had mine done, my shoulder and arm were almost completely numb due to the nerve damage so I never felt the needles giong in. If you are hypersensitive, I can't imagine it feeling very good! As far as spread...maybe; I don't know. You should really talk to a PM doc who is very well versed in CRPS.
I guess my point is that you should not embark upon anything invasively new unless such test will likely dramatically have value towards changing your situation for the better. Should your doc only want the studies done for academic considerations and will not change the course of care, then why risk it? If CRPS is truly your diagnosis, it is not likely to get a whole lot better, but it can surely get eons worse under someones care who is not knowlegable!
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