Dear jacjie, In regards to what you were saying about arachnoiditis being unknown i dif a little experimrnt at a party. My niece, a nurse anesthetist, her boyfriend, an anesthesiologist & her boss a pm/anes dr were asked by me "Is there any terminology , disease, syndrome etc that you have never heard of & if so you could easily find out through med books, journals etc right? They all said yes, i said arachnoiditis & none had heard of it & grabbed their phones to look it up. They were amazed that they had never been taught about it or even heard of it. So i suggested that they ask their collegues the same question. Results were not one knew without lookihg it up. Thought that you might want to know this. Even a pain mgmt/anes didnt know. How much have you read about arach & how can you just live with no pain medicine? Inhumane. Bless you & have you tried a physiatrist or PM&R dr?