Quote:
Originally Posted by cait24
gr8ful, Let us know how you do after the neurologist appointment. My thoughts are with you through this difficult time,
kathie
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I will ad my 2 cents to this. I was diagnosed about 7 or 8 mos ago, after having syptoms for appx 3 years. We probably all wondered the same as you.I have read several places, that after about 3 or 4 years, your symptoms are about as bad as they usually get. Howver, as I have read on this group, that is not always the case. I was doing just great on 3 Mestinon a day, until I again developed the old droppy eye. So was allowed to increase dose to 4 times a day, still some problems. but tolerable, (using a little clear surgical tape to help hold it up if needed). So I agree, a day to day thing, you won't know for sure where its going. Again, I will say, could be worse, it could have been something terminal. Dont be scared, they have lots of medicine for this, and can live with it.
FREDH