acmartin,

I am actually in your area. Feel free to PM me if you like and I may be able to steer you to some people who may be able to help in the area, I spent alot of time and money digging through what he had available locally.

I am almost 16 months along and still facing issues but improving.

May I inquire what therapies if any have you tried? Many here recommend a supplement regimen which if you do a search you will find a post by Mark with his recommendations.