I have been fighting RSD since I for 10 years, 5 years with it just in the foot and 5 full body. 2 years ago I was also diagnosed with sarcoidosis in the Liver and Lungs. Now its starting to spread more and getting worse so my doctor thats taking care of it wants me to see a ruematologist at temple university. The problem is the doctor that I met there believes and wants to treat the sarcoid but doesnt believe RSD exsists and thinks its all mind over matter. The sarcoid is now in the stomach and they think its moved to the nerves as well so I do need more help but I dont think I should see a doctor who might help he sarcoid but ends up making my RSD worse. When I told her what I can and cant do because of the RSd she is like you can do it and must. For 2 years I was bed ridden and in a wheelchair but now I am walking again and wearin shoes but she is like I must do more no matter how much pain. Like I cant be in water as it sends me into sevee spasms throughout my body, my body just curls and shakes, so I sponge bathe and wash my hair in the sink but he is like I must go to the pool and stay in whether I spasm and cry in pain.I am jst worried this doctor will make me go backwards instead of forward as my RSD is conserned. Monday I am going to try to call my doctor and ask if I can be refered to another doctor at temple and one primarly will accept my 2 illnesses not just one. My mom didnt like the doctor either as when we would talk to her she would lay all over the table like she was bored and she wouldnt stop playing with her hair. I know my RSD doctor wouldnt want me going backwards as he has worked hard getting me here I am today. I just dont know how I would get the new doctor to understand RSD as when I asked her if she knew about it she was like I heard of the name but didnt know what it was or meant. And when she was examining me, my body wa turning colors and she was like my nerves are ove reacting but that its normal for young people in there 20's to do that. I dont know how some doctors can be so idiotic. What would others do? Temple university is renound for treating sarcoid, Iam hoping that there maybe a doctor that can understand both illnesses instead of just dismissing the RSD part as its just as dibilitating or even more dibilitating then the sarcoid.

Samantha