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Old 02-10-2013, 01:59 PM
pebblebeach2 pebblebeach2 is offline
Junior Member
 
Join Date: Jun 2012
Location: New Jersey
Posts: 68
10 yr Member
pebblebeach2 pebblebeach2 is offline
Junior Member
 
Join Date: Jun 2012
Location: New Jersey
Posts: 68
10 yr Member
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Hi all. I happened to find this post and was wondering if anyone here can give me some insight.

First let me give you a run down on my history. It is rather long & complicated.

---- 1994 Lumbar surgery for herniated discs;
---- 1995 cervical surgery for foramenal stenosis;
---- 1997 lumbar surgery for "flatback" with Harrington rods;
---- 2000 cervical surgery for "kyphosis" with Harrington rods;
---- 2003 surgery left leg for DVT/blood clot;
---- 2006 Implant Spinal Cord Stimulator;
---- 2007 Pancreatic surgery;
---- 2011 Spinal Cord Stimulator removed;
---- 2013 Intrathecal Pain Pump Implanted

Other medical conditions:

---- Diabetic; Type II
---- Right Kidney disease
---- Congenital absent left Kidney

---- EMG done and conclusion was that I had severe nerve damage in the cervical & lumbar region; severe arthritis & peripheral neuropathy
---- MRI as per the latest on the cervical and thoracic; Mylomalacia - softening of the spinal cord; focal cord atrophy C4-6 levels; severe loss of disc height in cervical area; the Thoracic showed protrusions and mild disc bulges. I think there was mild stenosis but can't remember which levels. I do have the MRI report and have to check it out for further information.

Symptoms:

---- Peripheral Neuropathy of both legs. The left leg is more severe which included numbness in both legs; loss of balance issues; feelings at time that I am walking on pebbles [doctor felt that was related to diabetic issues] pins and needles feelings in toes; burning feeling in upper leg usually the right leg; issues with severe cramping of legs which is intermittent; always occurs at night time; excruciating pain from cramps
----- Intrathecal Pain pump was placed at T-10 level to help the mid-low back issues. It works fairly well in that while I may have pain at times it is on the mild side.
---- Due to neck issues of myelomalcia; focal cord atrophy I have symptoms going from weakness in the arms; weak feeling at times in the hands/fingers area; radiating pain into both shoulders. Centralized pain around the spinal cord; feeling of pressure in this area.

---- But here is what brought me to this particular posting. For probably a few weeks at this point I guess I started to have "involuntary movements." It tends to happen while I am lying down. I can be watching TV and all of a sudden its like there is a "jolt" to usually the upper arms/shoulder areas. I think I can probably say once in a while it was a severe movement that occurred while I was asleep and caused me to wake up. Once in a while I may beel it in other spots then the upper extremities. Sometimes the legs but mainly the arms/shoulders. Its like when a doctor does a knee-jerk test to the patella I at times get my arms will react like a knee would when the knee responds to the knee-jerk test.
If I am correct there are similar tests that are done to the biceps and triceps.
I normally wouldnt make an issue out of something. If it happened once or twice I probably would have thought it was strange but let it go if it stopped. But it seems to be an ongoing problem at this point in time. Not sure what to make of it.

Just another note on my history. In 1994 I developed tremors of the left arm. It would be severe tremors at times. So I saw a neurologist and after numerous office visits; EEG; EMG; MRI of the brain the conclusion was that I had Parkinson's disease based on examination and I guess test results ruled out other conditions. I did get a second opinion which said 75% that it was Parkinsons. I ended up on 3 anti Parkisnons medications of Sinemet; Eldypryl and Amantidine.
In 1997 I was having surgery on my lumbar area so my orthopedist had me see a neurolgoist for a consult prior to surgery. His opinion was that I did NOT have Parkisons. He thought it was Essential Tremor.
I ended up seeing a specialist in California that ruled out Parkinsons and Essential Tremor. He could NOT specify what the tremors were caused by. Whether any of this has any impact on what is occurring NOW I cant say.

Any comments/input on the involuntary movements? I see the term "myolconus" not sure if that is part of what is going on with me. It does seem that the involvuntary movements do occu while I am at REST rather when I am ACTIVe like typing.

Any input would be appreciated. Thanks for listening and sorry for such a long post but I had to include everything.
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