Originally Posted by Angelina55

I do not really have that much family support. They mostly think I am "strong enough to handle it on my own" is what I hear the most or that I need to learn to do it all by myself. That I shouldn't rely on others. It is kinda frustrating. I try to get them to understand but I don't think I will ever get them to "get it". My dad is great but he works out of town and he is mostly good with just words and around the house. He doesn't want to go to appointments with me. He will call and check on me everyday, and always tell me that I can do this. He reminds me that he loves me and is here for me. He has come home early a couple of times to help me out. I don't have many friends, being in chronic pain will do that. I have one who is great but she is busy and can't be there all the time. But she is great.
I am looking for a neurologist but I don't know if there are any that are experienced in CRPS or not. I live in a small town in Idaho so finding one could be difficult. I do live near Spokane, WA but I don't know if I can afford the gas to go there all the time. I see one for my migraines so I will ask her. I have an appointment with my family doctor on monday so I will talk to him about it. I think you are right about finding a doctor that will oversee everything. Having one doctor that I can go to, handle my meds. I think that will remove some stress in my life and some chaos. Everything seems so scattered right now that it is crazy to try to follow.
The weekends my pain goes down, but that is because I get to stay in bed and stay off of it and "protect" it. I only do my movement PT in bed. And I don't have to wear pants. LOL So lately my pain has been mostly at a 7 with an occasional jump to a 9, mostly when I have to be in a car or when I try to clean the house. I still get spasms when I forget my muscle relaxers and sometimes even when I take them but they are not as intense. I really think my vitamins are helping because I am seeing a difference in the intensity in my pain. Atleast I am hoping.
Angelina