Originally Posted by alaska49

Thanks for your posts, I do know what its like with bad doctors already as I have seen over 197 doctors in these 5 years with half of them not believing RSD and thought now it was finally all over. I just didnt expect to have issues with a doctor about RSD because of the sarcoid. My pain specalist I know wouldnt like her either and wouldnt be happy with anyone hindering my recovery. I know my other doctors need help treating the sarcoid but I just hope they understand they need to refer me to a doctor that can accept both illnesses. Fighting the RSd and the sarcoid is so hards at times, specially when the sarcoid flares then it flares the RSD. The doctors are just worried since the sarcoid is spreading that it may go to the spine or brain if not under control, the sarcoid fevers are getting worse with them getting as high as 105 so I do know its important to stop it. My pain specialist and pulmonary doctor are great and I am very close to them, my pain dr is like my grandfather, the whole st luke hospital team are great and all understand all the conditions I deal with they just arent as advaced with wide spread sarcoid as temple university is. I just hope my dr and I can find another dr at temple that can help the sarcoid and not make the RSD worse. The dr at temple made my mom really mad as when she entered the room she looked at my mom and was like your depressed and needs help and then told her she needs to leave the room and was like your daughters old enough to be without you and that she shouldnt be there. But with out her I cant get there as I cant drive and need to be helped with walking to make sure I dont collapse. My mom may be a little depressed with all her and I have to deal with but for the dr to say what she did was un called for. I wonder somtimes how some of these people can even be doctors, the nurse there knew all about RSD but the dr totally clueless.
Thanks again

Samantha