Thanks everyone for your replys.
loretta, my doctors at st luke dont seem to think there is anyone there at st luke that does advanced treatments for sarcoid. It took them even a long time to diagnose the sarcoid y oxygeon levels just started going down to the point I wasnt getting enough oxygeon to my brain that I didnt even know who I was at some points so I was hospitalized to get oxygeon it took like 3 months until my mom had enough and went to the doctors and asked why would a 24 year old need 5 liters of oxygeon there must be a reason. So a pulmonary dr finally did a exray and found the granulomas in my lungs along with alot of imflamation, and with my liver having issues they look at that too which was worse then the lungs. For treatment I have been on high doses of prednisone which helps and did shrink the sarcoid in my lungs but isnt stopping it from sreading. They have tried another med but it didnt help and the side affects were to great. I have oxygeon tanks with me for when Iam in need of it. So now they dont really know what else to do. At temple for bad sarcoid they do the IVIG treatment which I am actually hoping I could try as I know they are trying for RSD as well and for some is helping. I guess when it comes to sarcoid it is rare for to be in more then one place but my doctors think my RSD has weakened my body and immune system that it just cant fight it. Well I will call my pulmonary dr and pain dr tomorrow and see if they can look for another dr at temple that is willing to deal with both diseaes. Thank you everyone! Hope your all having a good Sunday!

Samantha