Thank you!!!
They did suspect MS at first.. I was 30 at age of onset- post partum.. I have had optic neuritis. .. I have had a big big work up.. One MRI showed a nonspecific lesion in the brain.. and one showed a possible demylenating lesion in the c spine (though the radiologists actually argued about this finding).. No O bands, but I did have some things in the LP that could signify MS when I was in the hospital - however I had meningitis from IVIG so they don't know how to interpret those results
I have a current diagnosis of CIDP and possible Myasthenia.. I get IVIG every few weeks which saves me.. I am not by anymeans at my baseline functioning however..
Do those symptoms sound like spacicity?? When I am at my weakest I'm not stiff I am floppy.. The only thing is that myotonia like muscle action that weirds me out (well it all does really