Quote:
Originally Posted by loretta
Hi Angelina, I've been thinking of you. Still can't get into my email to PM you. I need to contact my provider to reset the firewall.
Anyway, I'm so sorry you are having such a difficult time. So much coming at you at once.
Besides pain meds and anticonvulsants like lyrica or neurotin-many rsd drs use anti-depressants for nerve pain. Also benzodiazapines (high addictive) for dystonia. I'm sorry-do you have a dr. like neurologist or pain specialist who is familiar with crps overseeing your care? All of your symptoms are too familiar-I know it's tough. You are in way too much pain, sounds like you need some added meds to get it under control. I remember you saying you are in a '9' much of the time, and that's not OK. Are you sleeping?
There is a post on january 31 2013 about Dr. Swartzman and crps. It is really good-discusses various meds used for nerve pain. Dr. Swartzman is renouned crps dr. that now practices in Philadelphia. He was among 5 drs that did a trial ketamine study here at the Mayo clinic in Phoenix. long time ago. A friend of mine was an assistant.
Hope this helps. Take care, loretta  |
Me? Sleep? What is that? Lol no I don't get much sleep, maybe four hours all together and not at the same time. I saw my family doc today and he put me on gabapentin (sp?) and I am seeing a neurologist for my migraines and I will be seeing her on the 28th so I will talk to her about it. And yes most of the time if I am lucky my pain is a 9. 85% of the time it is a 10. It is so unbearable that I don't know what to do, I feel like my body is going to shut down on me. My blood pressure is dropping. It was low today. And I can feel it when I am home. My dad has a machine and I think I am going to start keeping track of it. Ever since it spread through my leg, I just never get relief unless I am laying in bed and then it only goes down to an 8 for a couple hours while on my pain killers. I will talk to my doctor about those meds. Thank you!!!
Angelina