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Originally Posted by Angelina55
Me? Sleep? What is that? Lol no I don't get much sleep, maybe four hours all together and not at the same time. I saw my family doc today and he put me on gabapentin (sp?) and I am seeing a neurologist for my migraines and I will be seeing her on the 28th so I will talk to her about it. And yes most of the time if I am lucky my pain is a 9. 85% of the time it is a 10. It is so unbearable that I don't know what to do, I feel like my body is going to shut down on me. My blood pressure is dropping. It was low today. And I can feel it when I am home. My dad has a machine and I think I am going to start keeping track of it. Ever since it spread through my leg, I just never get relief unless I am laying in bed and then it only goes down to an 8 for a couple hours while on my pain killers. I will talk to my doctor about those meds. Thank you!!!
Angelina
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Angelina, Does your neurologist have experience-knowledge of crps?
You mentioned your family Dr. putting you on gabapentin-which is the same thing as neurotin. It is used for crps. Are you still taking the lyrica??? I know you feel like you are going in circles-but do you have ONE Dr. managing your crps-meds?
I have high blood pressure and am on meds, but I also get low pressure as I mentioned before and get syncope-(passing out) So getting a cuff and keeping a diary of your pressure may be a very good idea. I take my diary to my dr. so she can keep track of it and make adjustment in meds if she feels I need that.
I've been seeing her the last year and half. Before that had my neuro for 6-7 years. But lost my insurance.
My neurologist was very concerned when I wasn't sleeping-it greatly increases pain. He said-not acceptable- Having a crps doc that understands it is very important= to script the combination of appropriate meds in the right amount-making adjustments as we need. I hope you find that person soon. Are you taking an anti-depressant? Many of us do. It's a combination of various meds that work for many of us.
You are in so much pain. Are you still in pt 3 days a week? there is a big discusssion here on neurotalk about 2 years ago on lyrica and neurotin. I went back and looked at it. Some took both- some took one OR the other. Maybe others will have some thoughts. I've taken both but NOT at the same time. Just concerned and know you are overwhelmed. loretta
