Quote:
Originally Posted by loretta
Angelina, Does your neurologist have experience-knowledge of crps?
You mentioned your family Dr. putting you on gabapentin-which is the same thing as neurotin. It is used for crps. Are you still taking the lyrica??? I know you feel like you are going in circles-but do you have ONE Dr. managing your crps-meds?
I have high blood pressure and am on meds, but I also get low pressure as I mentioned before and get syncope-(passing out) So getting a cuff and keeping a diary of your pressure may be a very good idea. I take my diary to my dr. so she can keep track of it and make adjustment in meds if she feels I need that.
I've been seeing her the last year and half. Before that had my neuro for 6-7 years. But lost my insurance.
My neurologist was very concerned when I wasn't sleeping-it greatly increases pain. He said-not acceptable- Having a crps doc that understands it is very important= to script the combination of appropriate meds in the right amount-making adjustments as we need. I hope you find that person soon. Are you taking an anti-depressant? Many of us do. It's a combination of various meds that work for many of us.
You are in so much pain. Are you still in pt 3 days a week? there is a big discusssion here on neurotalk about 2 years ago on lyrica and neurotin. I went back and looked at it. Some took both- some took one OR the other. Maybe others will have some thoughts. I've taken both but NOT at the same time. Just concerned and know you are overwhelmed. loretta  |
Thank you for your concern, it is nice that at least one person cares about me. No I do not have one doctor in "control". I don't know if she knows about CRPS, that will be my first question for her. And right now finding that one doc to oversee everything is my number one concern. I need someone to help walk me through this. I feel like I am getting worse not better. I am going in the wrong direction. I know I have only had this for only 6 months, but I caught it fast and I don't think I should be getting worse.
I have pre-existing depression and mental health issues, so for those I am taking lexapro and abilify.
For sleep I am taking Trazadone. But it doesn't seem to work. I am in so much pain that it wakes me up and I can't fall back to sleep.
Could there be a problem with taking both lyrica and neurotin? Maybe I will start a thread on it. I will have to also look it up to make sure. I don't feel like the Lyrica is really doing anything but make me drowsy. But I wouldn't really know unless I stop taking it. And I don't really have any CRPS meds. except for the pain killers, everything I am taking was because of a pre-existing injury. Oh and the muscle relaxers I was just put on. I think I need some kind of anxiety med because when the pain gets bad I get panic attacks. Is that normal? I just like start freaking out and can't breath and my heart feels like it is going to jump out of my chest!
Angelina